May is the awareness month for Prader-Willi Syndrome, a rare genetic defect that is very close to my heart after my daughter was diagnosed with this condition in 2022.

If you would rather talk to me about the condition itself, I am always around if you had any questions and next Friday (31st May) I will be in the conference centre over lunch to answer any questions you have about the condition, sadly as Amelia has been unwell this week she will not be attending, but I'll be sure to bring her in soon!!

On Friday 31st May we will also be fundraising for the PWSA (Prader-Willi Syndrome Association) by Going Orange! On the last Friday of May people are encouraged to go orange to raise awareness for PWS, some of you might remember me coming in looking bright last year (the orange nails will be coming back).

We ask that if you want to come in wearing orange you make a small donation to the association, a just giving page will be set up for this. I know times are hard at the minute with the cost of living always climbing, but anything that you can spare would be greatly appreciated as it would go a long way to funding the amazing work the association do for the PWS Community.