The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.

Our inspiration for the last two years has been the beautiful Lily. Lily was diagnosed with Rett Syndrome at just two years old, taking away her ability to use her hands and full control of her body. Despite these challenges, Lily is the most happiest, cheekiest little girl you could ever meet. Her strength and determination are inspiring.

Reverse Rett solely rely on donations as they do not receive government funding.

This September, our incredible team of colleagues from Group Metropolitan will be pushing themselves to the limit as they take on 'The Lake District Challenge'.

Over two days they'll cycle nearly 200 miles across the hilly lakes or hike 50KM over the mountain loop of the Gables.

It's going to be tough, but truly inspiring and most importantly in support of an incredible cause.

Every donation keeps our team moving and makes a real difference.

Thank you all so much for any donations.