I will be doing a skydive on the 5th of July. Not a big fan of heights, but I am doing it for my son Fletcher. My son got diagnosed with Mitochondrial at the age of 8. It has been very difficult to understand why he has it and how he got it. Fletcher is now a part time wheel chair user and struggles with day to day activities. His sense of humour is definitely there and such a bright kid. We love him dearly!

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Please stand with us and fight Mitochondrial Disease and fight for hope. #teamfletcher