Thank you for visiting my page. You may already know that in 2019 I was diagnosed with an extremely rare lung disease caused Lymphangioleiomyomatosis (LAM) - an incurable and devastating lung and kidney disease - at just 24 years of age. My lung collapsed suddenly and unexpectedly when I was training in the gym. I had to spend two weeks in hospital to repair my lung, going through two weeks of a gruelling chest drain, air suction to remove air from my chest cavity, and eventually major surgery to remove some of my lung to stop the air from leaking. This was caused by a burst cyst, caused by LAM. I had previously been diagnosed with a benign kidney tumour in 2013, and had an embolisation to cut off the blood supply to the tumour whilst I was awake. They did not know at the time I had the rare disease, and I was discharged from care. At the same time, my dad was diagnosed with terminal cancer, and died later on that year. Life has been a very tough journey for me and my family. I even have to be extremely careful with decisions I make about my health, including pregnancy, as this disease can get very quickly and seriously worse as it is fuelled by oestrogen.

Fast forward to 2025, I have now reached some incredible achievements. Despite the uncertainty surrounding my lung condition, I have managed to take up running. Starting off in November 2024 with a mixture of a jog and walk over 3km, fast forwarding to October 2025 when I successfully completely a 25km race with a good pace, and I was able to run the whole challenge. In addition, alongside a huge group of wonderful friends and family, we raised money for LAM action by completing the Bristol 10km in May 2025. Without the support of LAM Action, I would never have been offered the medication Rapamycin, which could potentially save my life. I will forever be grateful for the contributions of scientists, clinicians and charities who have allowed me to be in the position that I am now. I have even had the opportunity to tell my story in Chicago to other women and their families. This disease has truly changed my life. I endeavour to support other women like me, especially for those who haven’t been as lucky as me, who have to have a lung transplant, and their families, and to provide the continued support for patients coming to terms with an incurable disease.

Now, I take on an EXTREMELY tough challenge. I will be running / jogging / completing four marathons back to back between the 25th - 28th February 2026. The importance of this run is that not only will we completing the distance of four marathons over four days, the other meaningful factors include the beginning of the run starting on mine and my husbands wedding anniversary and it will conclude on international rare disease day. In addition, we will be running from my home town of Bristol, ending in my husbands home town of Salisbury. And finally, we will be tracked over GPS to spell out “LAM”. If successful, this run will be incredibly helpful for raising awareness for our small charity LAM Action.

I have been already training a lot over the last few months, recently completing 19km, 25km and half marathon distances over the last few weeks, and training strength and other fitness alongside. I will continue to train very hard, will require a strong support group around me, and keep focused to make sure the event is successful. We are currently spending lots of time to thoroughly work out a safe route to complete the course. I feel strong and encouraged that my lungs still have the capability of carrying out this level of exercise.

I will be posting links to my blog to demonstrate my progress and commitment for the run, and the challenges ahead. This will be an extremely tough challenge but I truly believe with hard work and planning that it will be successful and incredibly meaningful.

There will also be a charity quiz night with incredible raffle prizes available around the time of the event. We aim to raise as much awareness and funds available for the charity.

Thank you to everybody that has supported me throughout the last six years and thank you so much for spending the time to read my story.