Story
For those who aren’t aware, Adam, Haylea’s brother, recently passed away and has left a huge hole in our hearts.
In his honour and memory, Haylea and Megan will be running our SECOND half marathon in our own home city of Worcester on 13th September 2026 to raise money for Spectrum Days.
Spectrum Days was a place that provided Adam with support, fun, inclusive activities and, importantly, respite for his parents on a weekly basis.
Adam was born with Pallister-Killian syndrome (PKS), an extremely rare genetic disorder which has resulted in him being profoundly disabled. However at Spectrum Days he had the freedom and professional support to live his best life!
Spectrum Days promotes and protects the physical and mental health of people with profound disabilities (PMLD), in Worcestershire and the surrounding area.
This is achieved by having a professional, experienced and dedicated team who provide a spectrum of services to the spectrum of disabilities associated with PMLD. The services are flexible and fun. Inclusive activities bespoke to the individual have evolved from the culmination of the management team’s many years working in the voluntary, private and business sectors.
They provide excellent services through an innovative approach to service provision, responding to the needs of the family. Through a unique combination of Day opportunities, specialist equipment, resources, skills, knowledge and experience. By pulling a range of specialist services and resources together high quality, efficient solutions are provided to this marginalised but very special group. We have long term plans to cover the whole age range meeting the relevant stresses and strains faced by familys at milestones along the journey of life.
Thanks for taking the time to visit my JustGiving page.
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