Haylea and Megan will be going to try to run the furthest we have ever tried, attempting the half marathon in our own home city of Worcester on 15th September 2024 to raise money for Spectrum Days!

For those who aren’t aware, Spectrum Days is a charity that provides Haylea’s brother, Adam, a place of support, fun, inclusive activities and respite for her parents on a weekly basis. Adam was born with Pallister-Killian syndrome (PKS), an extremely rare genetic disorder which has resulted in him being profoundly disabled. However at Spectrum Days he has the freedom and professional support to live his best life!

Spectrum Days promotes and protects the physical and mental health of people with profound disabilities (PMLD), in Worcestershire and the surrounding area.

This is achieved by having a professional, experienced and dedicated team who provide a spectrum of services to the spectrum of disabilities associated with PMLD. The services are flexible and fun. Inclusive activities bespoke to the individual have evolved from the culmination of the management team’s many years working in the voluntary, private and business sectors.

They provide excellent services through an innovative approach to service provision, responding to the needs of the family. Through a unique combination of Day opportunities, specialist equipment, resources, skills, knowledge and experience. By pulling a range of specialist services and resources together high quality, efficient solutions are provided to this marginalised but very special group. We have long term plans to cover the whole age range meeting the relevant stresses and strains faced by familys at milestones along the journey of life.

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