Story
Thanks for taking the time to visit my JustGiving page.
Between 8 of us we are Riding 200 miles on an exercise Bike - We are not cyclers so this will be interesting! - We are doing this outside our store on the 10th and 11th April :-)
We had a lovely Gentleman reach out to us in regards to a heartbreaking story - Please take 2 minutes to read his very touching story
On 11th April 2026, what should have been our daughter Lyla’s 3rd birthday, we are holding a Race Night at the Rising Sun Pub, Hull, in her memory. We are hoping to raise awareness, build community support, funds for HEY Kids Type 1 Support Group, and continue pushing for the change that should have protected her. I am reaching out to ask whether you might consider supporting the event through sponsorship or a raffle prize donation. Lyla was just two years old, bright, joyful, energetic and full of life.
On 3rd May 2025, she passed away suddenly in her sleep, less than 16 hours after being seen by a GP. Despite showing multiple concerning symptoms, she was diagnosed with tonsillitis. No tests were carried out. The cause of death was undiagnosed Type 1 Diabetes, leading to Diabetic Ketoacidosis (DKA) and a gastrointestinal bleed. Our world changed forever that day. Since then, Lyla’s story has been featured nationally on BBC Breakfast News because what happened to her is not rare, it is happening to children across the UK. I have personally received over 400 heartbreaking stories and thousands of comments online from parents whose children nearly died from DKA. Only two were diagnosed at their first GP appointment. The real rate of children aged 0–5 ending up in critical care with DKA is 38–45%, and rising. This is a national failure, and it must change. That is why we are campaigning for Lyla’s Law, a simple, life saving requirement for routine diabetes testing (urine and/or blood) for babies, toddlers, children, and adolescents when any of the 4 T’s are present: Thirst, Toileting, Tiredness, Thinning. These symptoms are already outlined in NICE Guideline NG18, but they are not being followed consistently. Our petition has secured a parliamentary debate on 9th March, and I will be meeting the Health Secretary, Wes Streeting, the following day. Momentum is building — but we need the public behind us. This Race Night is not just a fundraiser. It is a celebration of Lyla’s life. It is a moment for our community to stand with us. And it is a way to push forward the change that should have protected her. Your support, whether through sponsorship or a raffle donation, would make a meaningful difference. It would help us: • Raise awareness of the 4 T’s • Support the national campaign for Lyla’s Law • Protect other families from the devastation we live with every day • Honour Lyla’s memory in a way that creates real, lasting change If you are able, please take a moment to watch this short video about Lyla’s story: https://m.youtube.com/watch?v=1DkLDF_Zc_s Lyla deserved better. If her story can save even one life, her legacy will live on.
This event is held in loving memory of Lyla, and all proceeds will go to HEY KIDS TYPE 1 DIABETES CHILDREN & FAMILY SUPPORT GROUP (Charity Number: 1173065), helping families affected by Type 1 Diabetes across our region.
