Myself and my friends completed the Edinburgh Kiltwalk yesterday (13/09/26 It was a lovely sunny day and we had a great walk in beautiful Edinburgh. We were delighted to raise over £1000 for our chosen charity PEM Friends. .

The charity provides support and advice to people suffering from rare skin blistering disease. Our aim was to raise awareness of the disease and raise funds to help PEM friends continue to provide the much needed support and advice to people with a Pemphigus/Pemphigoid diagnosis

All donations, no matter how small will make a huge difference. There is still time to donate. So … if you can, please click on the ‘Just Giving’ link.

Donating through JustGiving is simple, fast and totally secure.

Three years ago my son was diagnosed with an autoimmune skin blistering disease called Pemphigus Vulgaris (PV for short).

Pemphigus and Pemphigoid diseases are so rare, little is known about the disease, both publicly and professionally, resulting in delayed diagnosis and trearment. Ultimately prolonging the pain and suffering for those eventually diagnosed. This is an extremely painful, life long condition. There is no cure! Much more research is required to explore different treatment options as treatment often involves high dose steroids, which can also have lifelong side effects.

Thank you 🙏