Heidi is climbing Snowdon on the 2nd September. A few weeks after her expedition she'll be having a bone marrow transplant.

She's is an exceptionally kind and caring person. And she's fearless!

Heidi has a rare genetic condition called Diamond Blackfan Anaemia (DBA), which primarily causes bone marrow failure. She's had well over 100 blood transfusions in her lifetime (we stopped counting), and endured many gruelling procedures.

Heidi has a challenging few months ahead. The transplant will involve high doses of chemotherapy, hair loss, a minimum of six weeks on a transplant ward followed by six months' isolation at home - but we're optimistic for a future without monthly blood transfusions.

Very few people in the UK have the DBA, but we're a community. Every year DBA families gather for a weekend to share and learn together. For many this is the only opportunity they will have to meet others with the same condition.

The weekend is organised by amazing, dedicated volunteers from the DBA UK charity. It's free for families - to ensure affordability isn't a barrier to anyone. But it's not really cost free; each place costs £150. It's a big undertaking for such a small charity.

It's because of the DBA weekends that Heidi has a positive view of her condition, 'DBA camp' is her favourite place. When asked what she thinks about DBA it's not needles or hospitals she says but 'bunk beds, rock climbing and her 'other family'.

Over the past 10 years DBA UK have empowered us with support, knowledge and hope. We want to pass on this opportunity to others and it's Heidi's hope to raise enough money to send three families to next year's gathering.

Thanks for looking at her page and for your donations.