Story
I was diagnosed in 2010 aged 21 and since then have undergone some major surgeries to remove multiple tumours, the most recent being a craniotomy to remove 2 meningiomas.
7 moths on I will be hoping to complete 5k everyday for the whole month of May to raise funds for NF2 Biosolutions.
NF2 Biosolutions increase awareness through advocacy, connections, hope, and support for NF2 patients & families. Dedicated to NF2 Research. Fundraising for new treatments or a cure for NF2 Schwannomatosis (NF2).
NF2 is a rare genetic disorder affecting approximately 1/35,000 people. Patients are born with NF2 resulting in the growth of multiple tumours throughout the central (brain/spine) and peripheral (organs/limbs) nervous systems.
