We are sharing Hermione’s story to honour her life and to help raise awareness of SJS/TEN, so that more research can be carried out, more lives can be saved, and fewer families have to experience the heartbreak that ours now lives with every day.

What took Hermione from us wasn’t her cancer. It was a devastating and rare condition called Stevens-Johnson Syndrome (SJS) / Toxic Epidermal Necrolysis (TEN)—a disease that most people have never heard of until it changes their world forever.

Every donation, no matter how small, is a tribute to Hermione’s incredible spirit.Thank you for helping us turn our heartbreak into hope.

Forever loved. Forever missed. Forever our Hermione. 💜🩷