This voluntary organisation was set up in the memory of the late Grace Nolan and the late Paul Woods. Both children died suddenly – aged 9 and 22 respectively, from HHT in the lungs. It is hoped that no other person should suffer this fate.

Awareness is key, so let's all have fun today while we help raise awareness of HHT .

Help HHT Ireland with its four core objectives

- Raise awareness.

- Provide support to affected families.

- Advocate on behalf of HHT families for improved services in the treatment of HHT.

- Help identify undiagnosed people