Story
I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.
They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”.
I have Neurofibromatosis type 1, I am the only one in my family who has this. I consider myself fortunate that up till now I haven’t had any health problems that can come with NF 1. Having said that, it has played a huge factor in my life that I’ve been unable to have a family due to my NF 1.
In 2015 I fell pregnant naturally knowing there would be a 50/50 change that the child would inherit NF 1. After testing at four months Into the pregnancy it was found that this was the case, myself and Paul came to the extremely difficult decision to terminate on medical reasons and my labour was induced. As we could and would never know to what extent the NF 1 would be and what life our child may or may not have as a result. We went on to have four rounds of IVF/PGD in all of these rounds bar one all my eggs were effected with NF1. We were thrilled to have one egg and went on to implant it but unfortunately it wasn’t meant to be. So this is why I’m running the 2026 London marathon. In the hope that maybe one day others won’t have to go through this pain and heartache.
Any donation is greatly appreciated to Nerve Tumours UK. In helping to improve the lives of people affected by neurofibromatosis (NF) and related nerve tumors, by providing support, information, and raising awareness.
