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Holly's fundraiser for XLH UK

Holly Knight is raising money for XLH UK
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Westonbirt Arboretum and Cirencester Half Marathon

XLH is a rare metabolic disorder with lifelong health issues, which until recently was poorly understood. XLH UK supports the UK community of patients and their families, contributes to research and campaigns for the best treatments and care.

Story

Please support me as I take on not one but two (yes, I'm mad) half marathons before the end of the year. The Westonbirt Arboretum Half and the Cirencester Half in September and November respectively. Hoping to raise more funds for xlhuk and raise awareness too.

XLH is a rare metabolic disorder with lifelong health issues, which until recently was poorly understood.

XLH UK supports the UK community of patients and their families; organising events, raising awareness and supporting vital research into the multiple aspects of the condition. We also advocate for the development of new treatments and standards so that everyone with XLH can get their best care.

This amazing charity has become a part of our lives since our 6 year old son, Sebastian, was diagnosed with this disorder, after many months of struggling to discover what the condition was that he has. Whatever we can do to raise awareness of XLH and help the charity with their work, can help benefit patients to live happier and healthier and as full lives as possible. Thank you so much for any donation. I'll be running for everyone those two days.

Donation summary

Total
£717.56
+ £71.25 Gift Aid
Online
£717.56
Offline
£0.00

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