Our son, our heart warrior Tommy was diagnosed with Tetralogy of Fallot when I was roughly 21 weeks pregnant. At nearly 12 weeks old, Tommy went into cardiac arrest after his little heart couldn’t cope with a suspected chest infection. He had a RVOT stent fitted on the 18th November 2025 and has been doing super since. He is now on the surgical list, ready to be discussed for his open heart surgery.

When Tommy was born and since, The Children’s Heart Surgery Fund have been amazing with us, providing us with help and support. We are raising money to enable them to continue helping other families like us in the hardest of times.

*CHSF support children and adults born with congenital heart disease (CHD) living across Yorkshire, Lincolnshire and Derbyshire. Patients living in our region must travel to Leeds for their care at the Leeds Congenital Heart Unit.

When families need us most, CHSF offer parent accommodation close to the hospital and a dedicated family support service during a child’s treatment. CHSF also provide vital medical equipment and resources to the Leeds Congenital Heart Unit and 19 regional clinics, including start-up NHS staff roles and specialist training across the network.

Further examples of how CHSF spend the money raised include:

• Supporting families with practical and wellbeing advice

• Giving welcome packs, travel grants and meal vouchers to families

• Funding vital medical equipment and ward facilities

• Providing Katie Bears, medals and certificates for each patient

• Contributing to the refurbishment of hospital facilities

• Collaborating on research projects to enhance expertise

CHSF are completely self-funded, so we can only do this with the help of public supporters