We invite you to join us in a heartfelt tribute to our incredible wife & mum who courageously battled a rare and aggressive subtype of melanoma known as mucosal melanoma. She fought this relentless cancer with unwavering strength and determination.

In her memory, we have chosen to raise funds for The Melanoma Research Alliance who have set up ‘The RARE Registry’, a groundbreaking organisation dedicated to supporting research and awareness for rare diseases, including mucosal melanoma and acral melanoma – two rare and difficult-to-treat subtypes of the disease.

The RARE Registry is a new direct-to-patient effort, providing a crucial platform for advancing research focused on these challenging subtypes. Using the RARE Registry, patients and their carers can easily provide information about their demographics, diagnosis, treatment history, lifestyle, and quality of life factors.

Here’s the game-changer: all information collected by the registry will be made available through an open-access portal. This portal will empower clinicians and researchers with the data they need to inform and advance future research efforts. By supporting this cause, you’re directly contributing to this groundbreaking initiative.

Mucosal melanoma lacks dedicated treatments and cures, and the same goes for acral melanoma. Together, we can change this narrative, offering hope to those facing these rare and aggressive forms of melanoma.

Please consider donating to our cause and sharing this page with your friends and family. Your support means the world to us and offers hope to those facing the challenges of mucosal melanoma and acral melanoma.

With heartfelt gratitude,

Savvas, Michelle, Alex & Andrew