Thank you so much for visiting our JustGiving Fundraising Page to raise money for The RDH12 Fund for Sight in honor of our youngest son, Sean.

In the Spring of 2025, we were given some very unexpected and devastating news. Sean was diagnosed with a very rare inherited retinal disease called RDH12 Leber Congenital Amaurosis (LCA). People with RDH12 LCA typically experience night blindness, restriction of visual field and progression to blindness generally by their late teens/early twenties. No child experiences the same RDH12 disease progression and currently there is no treatment. A year and a half ago, we learned that our sweet little 5-year-old boy may not get to see and experience the world around him as his sighted peers will. This news absolutely shattered our world as you can imagine, but Sean has continued to amaze and inspire us every day. What he is able to accomplish happily and with a smile on his face every day, with the vision that he currently has, is nothing short of a miracle.

Sean loves to play baseball, soccer, golf, videogames and is a yellow-belt in Karate. He is a sweet, kind, gentle, loving and low-key hilarious little guy. To know Sean is to love Sean. We know that in order for Sean to continue enjoying these experiences of life and countless others, a cure for this vision robbing condition is critical. Unfortunately, time passed can equal vision lost, which is why we are so grateful for the ray of hope that the RDH12 Fund for Sight has provided.

The RDH12 Fund for Sight is part of the RDH12 Global Alliance, an amazing group of individuals and families from all over the world affected by RDH12 gene mutations. They have been working tirelessly to find a cure for this vision robbing condition. In July 2025 the RDH12 Global Alliance partnered with Opus Genetics to accelerate development of a gene therapy for RHD12-associated LCA. This is the closest we have EVER been to a cure!

Getting a new gene therapy treatment into and through clinical trials and ultimately to the patients, like Sean, who need it, is an extremely lengthy and expensive process. Any donation possible would be so greatly appreciated as we race against time to help Sean and many others see the world for longer. Please help us Keep Hope in Sight!

Please share this page with friends, family, neighbors, businesses. Prayers are greatly appreciated also.

Thank you from the bottom of our hearts,

-The Barry Family- Kevin, Erin, Liam, Cassidy and Sean

**** please note JustGiving automatically adds a 17% tip To your donation, this does NOT go to the fundraiser. You can change it by clicking customize tip and change it to zero (or whatever you like) Thank you!!