Story
In April 2026, I will be running the London Landmarks Half Marathon for Endometriosis UK 😱 let me tell you, I am by no means a runner. This absolutely terrifies me. But it also really matters to me, and that’s why I’m pushing myself so far out of my comfort zone.
A few years ago I was diagnosed with stage 4 endometriosis on my bladder, bowel and pelvis, but I also had incredibly rare endometriosis growing on my diaphragm. I knew something wasn’t right when, every month during my period, I felt pain in my shoulder that could only be described as shards of glass. I had to fight to be listened to, googling my own symptoms, begging doctors to check the area. Endometriosis on the diaphragm isn’t something a gynaecologist usually deals with, and I went through years of being fobbed off.
Eventually, after a long and exhausting journey, I had serious cardiothoracic surgery to remove it. I spent two nights in ICU, went through a long recovery, and even suffered withdrawals from the drugs. But it was worth it and I will forever be thankful to the two surgeons who changed my life.
I was also told, like so many women with endometriosis, that having children might not be possible. I feel lucky every single day that I was able to have two, and I know this isn’t the reality for everyone.
The truth is, I was lucky to be able to go privately at times, to get the early care and incredible doctors who treated me. But it shouldn’t come down to luck, or money, or knowing the right people. Everyone should have access to proper care, and more research desperately needs to be done into treatment. No young girl should be dismissed the way I was, told that the pain was “normal” or that heavy periods were just part of life.
So here I am, running a half marathon (something I never thought I’d do), not aiming for a time, just aiming to finish and to raise money so that others can get the support, care, and hope they deserve.
If you can support me and Endometriosis UK, I’d be so grateful.
