Thanks for taking the time to visit my JustGiving page.

We are opening half term week Monday to Friday 6-9pm

Sen Hour 5-6pm

We Are raising money this year for Niemann Pick UK again,

As you may be aware our niece Kara was diagnosed with Niemann-pick disease type C in April 2023, since then this charity has been there for the family for anything and everything that we have needed, Niemann-pick is a degenerative condition that as seen our niece go from an amazing little chatty character walking talking, dressing herself fully independent on the toilet. to now needing all personal care done for her, she is now non verbal and non mobile,

alongside Niemann-pick, Kara also has Cataplexy, Autism and a mild hearing loss, she has a lot of seizure on a day to day basis and is now completely tube fed, she cant have anything orally not even medication.

this is our way of helping Niemann-pick with supporting other familys in the same or similar situation.

Thank you all for taking your time to read and supporting us.

if you would like to see update on kara please do find her facebook page Kara-NPC warrior