Every year, hundreds of families receive life-changing news: their child has been diagnosed with Duchenne Muscular Dystrophy (DMD), a rare and devastating muscle-wasting condition. Last year, we were that family. Our son Kitto was diagnosed with Duchenne, a condition that currently has no cure and steals the strength of young boys, often cutting their lives far too short.

Duchenne affects 1 in every 3,500 boys worldwide, with 2,500 people living with DMD in the UK. Without intervention, most boys lose the ability to walk by their early teens, and many face life-threatening complications before reaching adulthood.

As parents, our mission is unchanged: to give Kitto the best life possible and every opportunity to thrive. But now, we’ve taken on a new role – fighting for all boys with Duchenne.

We’re fighting for:

Awareness: To help more people understand the impact of Duchenne.

Access to Treatments: Every family deserves health equity and the chance to try life-changing therapies.

Research: To fund groundbreaking studies that bring us closer to a cure.

Hope: To never give up on a better future for our boys.

This September, I’ll climb Ben Nevis with 13 incredible friends and family members to raise money for Muscular Dystrophy UK, a lifeline for families like ours. Our goal is ambitious, but for boys with Duchenne, time is precious, and the fight can’t wait.

Please, join us in making a difference. Every donation brings us closer to better treatments, better support, and ultimately, a cure.

For Kitto. For every boy with Duchenne. For hope.