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One more for the road

Ian Cusick is raising money for Joseph's Goal
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Rat Race 100 Ultramarathon [Bamburgh - Edinburgh] · 4 July 2026 to 6 July 2026 ·

Joseph Michael Kendrick is 17 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. Joseph’s Goal is to raise funds and awareness into NKH research, and one day find a cure.

Story

Thanks for taking the time to visit my JustGiving page.

One final run. 100 miles, Bamburgh Castle to Edinburgh Castle.

Raising funds for research into Nonketotic Hyperglycinemia (NKH), or glycine encephalopathy, is a rare, severe genetic metabolic disorder where the body cannot break down glycine, causing toxic accumulation in the brain and spinal cord. Characterized by high mortality, it manifests shortly after birth with seizures, coma, and severe developmental delays.

Joseph's Goal is inspired by the story of Joseph Kendrick:

https://josephsgoal.org/

Donation summary

Total
£1,155.65
+ £245.00 Gift Aid
Online
£1,155.65
Offline
£0.00

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