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Ian's fundraiser for Alex, The Leukodystrophy Charity

Christopher Davies is raising money for Alex, The Leukodystrophy Charity

Tunnel 10k 2026 · 12 April 2026 ·

Alex, The Leukodystrophy Charity (Alex TLC) was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.

Story

Update:

Thank you everyone for your generous donations. I finished the race in 1h 5m 26s. The total amount donated will be a minimum of £1000 and I am truly grateful for your support. A reminder of the charity and its work is below .

Love to all ❤️

Ian

The charity support families and promote research in to all forms of Adrenoleukodystrophy (ALD). In adults, it is a rare, X-linked genetic metabolic disorder, often manifesting as Adrenomyeloneuropathy (AMN) between the ages 21–35. This is the condition that my immediate and extended family are living with right now.

I have been fortunate that genetic research confirmed that I cannot be a a carrier of the gene. I have not had to live with the worry of developing symptoms that would eventually place me in a wheelchair like my sister and late father.

I would be extremely grateful if you could sponsor me to at least finish the 10k race on April 12th. I want to raise as much money as possible to ensure support is available for all those living with ALD.

I am not setting a fundraising target but any amount, however large, however small, will be put to good use. My only target is to finish the race.

Thank You

Donation summary

Total
£1,000.00
+ £238.75 Gift Aid
Online
£1,000.00
Offline
£0.00

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