Story
Update:
Thank you everyone for your generous donations. I finished the race in 1h 5m 26s. The total amount donated will be a minimum of £1000 and I am truly grateful for your support. A reminder of the charity and its work is below .
Love to all ❤️
Ian
The charity support families and promote research in to all forms of Adrenoleukodystrophy (ALD). In adults, it is a rare, X-linked genetic metabolic disorder, often manifesting as Adrenomyeloneuropathy (AMN) between the ages 21–35. This is the condition that my immediate and extended family are living with right now.
I have been fortunate that genetic research confirmed that I cannot be a a carrier of the gene. I have not had to live with the worry of developing symptoms that would eventually place me in a wheelchair like my sister and late father.
I would be extremely grateful if you could sponsor me to at least finish the 10k race on April 12th. I want to raise as much money as possible to ensure support is available for all those living with ALD.
I am not setting a fundraising target but any amount, however large, however small, will be put to good use. My only target is to finish the race.
Thank You
