Most people with Telomere Biology Disorder remain undiagnosed through lack of awareness and routinely available diagnostic tests.

Many are wrongly diagnosed and, as a result, receive inappropriate and inadequate treatment.

Medical, financial and mobility problems often make it impossible for patients to attend multiple clinics and relevant knowledge and expertise is often unavailable.

A substantial number of doctors from the services needed by patients will have little or no knowledge of Telomere Biology Disorders.

DC Action want to address these challenges by bringing together physicians from these various disciplines to work with patients to establish and develop a network to improve local access to multidisciplinary care and to facilitate clinical knowledge exchange and build expertise.

Your donations will support this vital work.