Unfortunately on Sunday 12th january Sara lost her fight with lupus. Sara has left her partner, children and family far too early. We are asking for donations to be made to lupus uk to enable more research to be done on how to help people manage their lupus diagnosis in memory of Sara as we know this is something that Sara would of wanted.

As many know the last few years was a battle for Sara and her health and she was constantly having to fight to try and make it through each day in pain, which she did every single day she was absolute warrior and we couldn’t be prouder of the fight she gave but unfortunately there is not enough research or studies on lupus to get the correct treatment plan what works for one lupus patient may not work for another, Lupus is a chronic autoimmune disease where the immune system is dysfunctional and mistakenly identifies the body’s own tissues as foreign invaders. In people with lupus, the immune system creates autoantibodies to attack the body’s tissues. These form immune complexes which cause inflammation and damage – possibly affecting the organs and/or the joints in some lupus patients.

THE SYMPTOMS

Although there are many possible manifestations of lupus, those listed below are some of the more common. Lupus is a disease which can present many different facets, rarely do two people have exactly the same symptoms, and these can vary from just one to many.

Joint/muscle aches and pains

Extreme fatigue and weakness

Increased risk of miscarriage

Rashes from sunlight/UV light (including the classical “butterfly” rash on the cheeks and nose)

Flu-like symptoms and/or night sweats

Weight gain or loss

Inflammation of the tissues covering internal organs with associated chest and/or abdominal pain

Seizures, mental illness or other cerebral problems

Headaches, migraine

Kidney problems

Oral/nasal ulcers

Hair loss

Depression

Haematological disorders including anaemia

Swollen glands

Poor blood circulation causing the tips of fingers and toes to turn white then blue on exposure to cold (Raynauds)

There is not enough research in the uk to help lupus patients, Sara struggled for years constantly being pumped with different medication that just didn’t work for her, once the lupus started to attack the organs it just destroying her as a person, she lost weight couldn’t move due to pain and struggle every single day life shouldn’t be like this for anyone please support us in being able to fund lupus uk who support over 5000 people, and research to make this illness more recognised, gps are not trained to identify lupus and will often diagnose with a different illness before lupus is recognised, this needs to change how can lupus suffers get the support from gps if they don’t know what they are looking for or how to help manage them symptoms. This needs to change Sara has left behind her children and family at such a young age because lupus took her, we don’t want this to happen to anyone else that needs the correct support and treatment.

Thank you for reading ❤️