June is Myasthenia Gravis (MG) Awareness Month, and I’m proud to be part of ‘My Miles’, a campaign to raise awareness and funds for people living with MG, like me.

MG is a chronic condition that causes unpredictable muscle weakness and extreme fatigue due to disrupted communication between the nerves and muscles. Things many people take for granted, such as walking, speaking clearly, eating, or even smiling, can become daily challenges.

Since being diagnosed, I’ve learnt to navigate life differently: some days are good, others just okay, and others really difficult. But through it all, I’ve found strength in knowledge, in community, and in appreciating small victories – like simply being able to get out of bed or do my hair on bad days, for instance. It’s a journey full of invisible battles.

Myaware - the only charity in the UK solely dedicated to Myasthenia Gravis - created ‘My Miles’ campaign, which I’ve proudly joined in order to raise awareness, fight stigma, and show support for all the vital services the charity provides: essential information, care, and advocacy for patients, families, and healthcare professionals.

That’s why I’m walking every day to collect as many steps/miles as I can for the ‘My Miles’ challenge. All funds raised will go directly to Myaware ensuring they can continue to support us, and that we fight MG together.

So please donate and share if you can, and help me to raise funds for this brilliant cause! I truly appreciate your kindness and contribution.

Thank you for being part of this journey with me.

With love,

Ines