My mum, Jenny, suffered with POLR3A-Associated Spastic Ataxia for over 2 decades and watching her slowly lose all abilities was heartbreaking. I spent my entire life watching my mum pass away slowly, and then all at once.

I’m her twenties, my mum started to get tremors. Then into her thirties she started to lose the ability to walk. Her fourties' were the most detrimental because she lost all ability to feed herself, then eat at all, she was mostly bed bound, her speech became mostly ineligible and then at 50 we lost her, only a couple of years after researches discovering and identifying her ultra-rare type of Ataxia.

Ataxia is a rare condition affecting around 10,000 adults and 500 children in the UK. The numbers seem small but the detrimental effect it can have on individuals is astounding.

I can’t go back and change the suffering and pain my mum had to go through, but I want to make a difference for those still suffering with this disease today.

So please join me in raising money for Ataxia UK.