The MED13L Foundation is a parent led group dedicated to improving the lives of children and families affected by MED13L Syndrome by raising awareness and funding research to advance research that will ultimately result in a cure. The Foundation has tapped into the new technologies that for the first time offer up HOPE for transforming the lives of people with MED13L. Costs are staggering and by working together with patience, focus, and fierce determination, we can accomplish incredible things. We ask today to CHOOSE HOPE for our community!