6-year-old Ivor is doing a SPLASHATHON on 7-13 June 2026 at Monmouth Sports Club. Splashing and swimming every day to raise awareness of Angelman syndrome and raise funds for FAST UK.

Please support us! Donate, swim and smile with us or maybe even do your own swimming challenge that week.

Angelman syndrome is a neurogenetic disorder affecting about 1 in 15,000 people, or about 500,000 people worldwide.

People living with AS have a genetic difference on chromosome 15. It’s normal to have two copies of chromosome 15 - one from our mum and one from our dad. But in Ivor’s case he has two dad copies of chromosome 15 - meaning that there is one important gene that is not functioning as it should. This gene controls a protein involved in brain functioning that helps us walk, talk and perform many other everyday tasks.

So as you can imagine, the repercussions are profound.

The Foundation for Angelman Syndrome Therapeutics UK (FAST UK) is an organisation of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education and advocacy. The Foundation is committed to raising awareness as well as assisting individuals to realise their full potential and quality of life. We are confident that our goals are within reach and together, with your help, we will change lives.