Aaron's fundraiser for International WAGR Syndrome Association

Aaron Colhoun is raising money for International WAGR Syndrome Association
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Poker night for IWSA · 24 November 2024

The Mission of the IWSA is to promote international knowledge and awareness of WAGR/11p Deletion syndrome and its complications and treatments, to stimulate research and to reach out those affected by WAGR syndrome in an effort to improve their lives.

Story

We are raising money for the IWSA to help promote awareness, stimulate research and support families touched by WAGR syndrome.

WAGR syndrome is an ultra rare genetic disorder involving wilms tumour (kidney cancer), aniridia, genitourinary abnormalities and a range of developmental delays and there are only around 500 registered cases in the world.

It’s a charity very close to our hearts as our beautiful 9 year old daughter Grace has WAGR ❤️

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Donation summary

Total
£822.00
Online
£822.00
Offline
£0.00

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