I will be attempting to run 50 miles in one day to celebrate Daisy's 5th birthday!

Daisy was diagnosed with a rare metabolic condition Non ketotic Hyperglycinemia (NKH for short) NKH affects 1 child in every 76,000 born there are approximately 50 kids in the UK and 500 worldwide living with this condition.

Sadly the mortality rate for children born with NKH is high and many die before they make it out of toddlerhood. Those that survive are often extremely disabled with uncontrollable seizures.

There is no cure, however there is research underway looking at gene replacement therapy, which may in the future hopefully save lives and prevent any parents in the future having to go through the nightmare and the heartache Daisy's parents have gone through.

Any donations will directly go to helping researchers find a cure to this awful disease!