On March of this year, we lost our little boy, Dylan.

During the earlier stages of the pregnancy, we had been told that it was likely Dylan would have down syndrome, but it didn't take us long to know that we were already in love with him and were prepared to take on the additional challenges that would have come with his condition.

Unfortunately, after five months, Dylan was born sleeping - but in his short life he has already changed my world and opened my eyes to down syndrome.

Let's just say that there are many misconceptions and prejudices that surround down syndrome that come from a time where very few people cared enough to support or nurture people born with an extra chromosome.

Thankfully times are changing, and there are many young people with down syndrome who are now able to enjoy life in a way many would have not thought possible once upon a time.

One of the many organisations who help with this is the Downs Syndrome Research Foundation UK.

In honour of their work and by way of a tribute to Dylan, who was due to have been born this month (July 2024), I shall be cycling from Guildford to Brighton on the Downs Link, which felt fitting.

I'll be doing this ride regardless, but if you care to help me raise some money for a cause now close to my heart, then please give whatever you can. Thanks!

Here's some info on DSRFUK from the horse's mouth:

Our vision is a world where all people with DS live a long, healthy and happy life.

We understand the challenges that people with DS can face with their health, life expectancy and quality of life. However, we believe people with DS are part of a diverse and exciting group and we are yet to discover the true depths of their potential.

Bringing our vision to life…

We want to give those with DS as well as parents, professionals and the public a better understanding of Down’s syndrome;

We can already improve the quality of life with simple advice on nutrition and lifestyle;

We fund research to improve our understanding and care of the medical conditions and disabilities associated with Down’s syndrome;

We promote equal collaboration with other charities and researchers; working for the common good;

We commit to an ‘attitude of transparency’ with research findings- both negative and positive;

We defend the human rights and dignity of people with DS, demanding equitable research funding and freedom from discrimination.