Jade's fundraiser for Esme's Umbrella

Jade Marshall-Walker is raising money for Esme's Umbrella
In memory of Shelia Jones

Kew Gardens Half Marathon 2025 · 30 March 2025 ·

Esme's UmbrellaVerified by JustGiving
RCN 1197087
Charles Bonnet Syndrome (CBS) is a very common disorder which causes vivid, silent, visual hallucinations when sight is lost - but is not a mental health condition. Esme's Umbrella is the only charity dedicated to supporting people who live with CBS and sourcing funding for much-needed research.

Story

Through the recent loss of my Nan and the desire to run and raise money for a charity, it seemed fitting to raise both awareness and funds for Esme’s Umbrella charity. Unfortunately my Nan suffered not only from cancer of the stomach lining but was tormented by Charles Bonnet Syndrome. CBS develops when someone of any age (children too) has lost a variable amount of sight. It’s caused by various conditions that damage the optic nerve and results in vivid, silent, visual hallucinations which range from disturbing to terrifying. It is not a mental health condition but caused entirely by loss of sight. This loss leaves the brain with nothing to interpret, so it fires up and creates its own images. It is not a well known condition and my aim is to raise the profile of CBS and aid further research.

For more information about CBS and Esme's Umbrella, please click the link below:

https://www.charlesbonnetsyndrome.uk/

Thank you in advance for your donation, it means a lot.

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Donation summary

Total
£1,744.33
+ £382.50 Gift Aid
Online
£1,744.33
Offline
£0.00

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