Story
As most of you know, I suddenly became quite poorly a few years ago with various symptoms eg . Excruciating pain, loss of sensation, loss of balance and that’s just to name a few. Many of my symptoms mirrored the symptoms of MS. After 2 years many blood tests, mri, ct scans, lumbar punctures I was given the diagnosis of FND. Which does mirror the symptoms of MS.
Over 3 weeks ago whilst having a nerve conduction test done at Walton hospital I experienced a seizure that just simply have not stopped since. I’m now experiencing 2-3 seizures a day which iv been told is called FND SEIZURES. There is no treatment for these just self management which is very difficult when I’m still trying to be the best mum possible for my children. I have lost my confidence and independence, I have had to give up driving for safety reasons and I have deteriorated quiet rapidly I can barely walk without crying in pain, I can’t be left on my own and at 32 years of age I never thought I’d be the first in the family using a mobility scooter.
1 in every 10 people are living with a neurological disorder and there just isn’t enough support or awareness around it these days so if I can raise some many by just sharing my story then maybe I’ll be able to get some support for other people that may be suffering in silence like me.
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