I'm running the marathon to raise awareness of an eye condition my eldest son Luca was born with.

Nystagmus is a complex eye condition, characterised by wobbling or flickering of the eyes.

Our mission is to champion the cause of the nystagmus community we support. We want to empower people, raise awareness of the condition, its impact and the interventions needed. We seek to change attitudes, break down barriers, build relationships and drive ground-breaking research.