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Thanks for taking the time to visit my JustGiving page.
Our boys are raising funds for a charity close to our hearts in the hope that we can raise awareness, remove stigma and create open and honest conversation about what CJD is and is not. Unfortunately CJD is fatal, there is no cure; but we hope that we can raise money to help the CJD support network progress.
The boys will do 100 miles on their bikes or walking.
https://cjdsupport.co.uk/wp-content/uploads/2024/06/Condensed-CJD-and-prion-disease-v1.pdf
One of the biggest stigmas surrounding CJD is that it is being referred to by many as “mad cow disease” a derogatory term used by the main stream media which is otherwise known as variant CJD (vCJD) linked to cows infected with BSE. Please refrain from using this term as it is upsetting. Our personal experience was not variant CJD but sporadic CJD and though there are different types, families affected may be upset by the term previously mentioned.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.