Tragically, Nattiya Sheanon passed away on 18th April 2025 after an unexpected aortic aneurysm. During surgery it was realised that she likely had Marfan Syndrome, a condition that her daughter, Sophie had been investigated for but not confirmed.

In honour of my mum, I will be running Budapest Marathon 2026 to fundraise for The Marfan Trust to raise awareness of Marfan Syndrome and to support further research. Over 18,000 people in the UK are affected by Marfan syndrome in the UK, with a significant number remaining undiagnosed.

Since my mum’s passing, it has been confirmed that she, my sister and I have Marfan Syndrome after genetic testing. We are now under hospital care and are being monitored to prevent future heart complications.

My mum's heart stretched far and wide from her home in Thailand to her second home in England. She radiated compassion beyond the need for words. Her love was unyielding. If you ever tried her cooking, consider yourself extremely lucky.

My mum’s spirit will enrich our lives, and her memory will continue eternally.

I hope that this fundraiser will help other families affected by Marfan Syndrome and help save lives.

Please celebrate Nattiya’s life and donate to The Marfan Trust in memory of her.