Jason Main

Jason's fundraiser for Hereditary Spastic Paraplegia Support Group

Fundraising for Hereditary Spastic Paraplegia Support Group
raised of £2,260 target
by 88 supporters
Everest Base Camp, 24 February 2024
We need all the help and support we can get to fund research and change lives


Gavin and myself will be trekking to Everest Base Camp in February 2024. 

I will be supporting a cause very close to my family, Hereditary Spastic Paraplegia (HSP) Support Group. In short HSP is a diagnosis that covers a range of rare genetic disorders caused by one or more gene mutations. 

My mother after the birth of her second child (my younger sister) was shortly diagnosed with HSP, initial symptoms of continuous pain in her legs. Throughout the years this progressively worsened to the point of limited mobility. The best way to describe her feeling is as though your legs are permanently tense all the time, no muscle relaxation.We have visited countless consultants for treatment, many of which give temporary pain relief. It has been extremely hard to accept that a cure will not be around in this lifetime. Instead we flip it on its head, make the most of the cards you are dealt with and support best we can!  

I have no doubt great advancements in R&D of Gene Editing will come to fruition to ultimately eradicate HSP for future generations.

About the charity

We help people affected by HSP, their families and carers by the provision of support, information and advice. We can provide grants to help members with the purchase of mobility aids and provide funding for research into this very rare condition.

Donation summary

Total raised
+ £519.75 Gift Aid
Online donations
Offline donations

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