💙 Help Me Support Those Living with Neurofibromatosis 💙

Every day, a baby is born in the UK with Neurofibromatosis (NF) one of the world’s most common neuro-genetic conditions. Yet so few people have heard of it.

Recently, my family received news that changed everything. My nephew was diagnosed with NF, a lifelong genetic disorder that causes tumours to grow on nerves throughout the body. We had never even heard of it before. Now, it’s part of our everyday lives.

There is no cure.

NF is unpredictable it can affect vision, hearing, mobility, learning, and appearance, and can even cause chronic pain and serious complications. It touches almost every part of life, making planning for the future feel uncertain and overwhelming.

But the hardest part? How invisible this condition is to the world.

That’s why I'm raising money for Nerve Tumours UK, a small but mighty charity doing life-changing work for those affected by NF. They provide specialist nurses who offer expert care and emotional support. Vital information to help families understand and cope with the condition. Advocacy and awareness to improve diagnosis and access to services.

I want help this incredible charity by raising the funds that allow them to keep doing what they do best, supporting families like mine and making sure no one faces NF alone.

How your donation will help:

• Provide direct support to families like mine living with the uncertainty of NF

• Fund specialist healthcare that is often missing from mainstream services

• Raise awareness so that more people get diagnosed early and receive the care they need

Your donation no matter the size will make a real difference. Every share, every pound, every moment of your time helps. From my whole family, and especially from my brave nephew. Thank you from the bottom of our hearts 💙

Let’s shine a light on NF. Let’s stand together. Let’s make hope louder than fear.