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Jed's fundraiser for CSF Leak Association - The Cerebrospinal Fluid Leak Charity

Jed Robbie Behmber is raising money for CSF Leak Association - The Cerebrospinal Fluid Leak Charity
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Running the length of Luxembourg · 11 September 2024

We're a UK charity supporting everyone affected by CSF leaks. Through trusted information, specialist support, advocacy and awareness, we work with experts to advance research, speed up diagnosis, improve treatment and create a future where no one is left to suffer needlessly from a CSF leak.

Story

On Wednesday September 11, I will be attempting to run the length of Luxembourg with two friends (Cam and Harjot). The challenge will stretch over 3 days, and we will cover roughly 107 kilometres. Luckily, we will have thorough support throughout from two very kind young men - Jack and Kai.

In planning this, I saw an opportunity to raise money and awareness for a charity that is close to my heart. For those who are close to me or my mum, you’ll know that she was bed bound for 3 years due to a CSF leak. Luckily, my mother is a mentally resilient and brilliant person, so she is able to navigate this as well as she can. Although resolved by an operation in 2021, she has a new CSF leak or a CSF venous fistula, which is yet to be located. This requires many more complex scans and an operation on her spinal cord. The CSF Leak Association charity is crucial in raising awareness of this often misdiagnosed condition.

Many thanks,

Jed

Donation summary

Total
£1,227.28
+ £258.00 Gift Aid
Online
£1,227.28
Offline
£0.00

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