Freddie Oliver

Jeffreys Biker Journey - Batten Disease Awareness Event

Fundraising for Batten Disease Family Association
raised of £1,000 target
by 15 supporters
Donations cannot currently be made to this page
Motorcycle Relay, 12 August 2023
Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
We fund research and support families to find a cure to Batten disease


Jeffrey's Biker Journey is a round Britain motorcycle relay ride to raise awareness of Batten disease. This year's ride includes the Batten Awareness Weekend at the Triumph Factory Visitor Experience, Hinckley, the home of Triumph motorcycles.

Batten disease is a rare, neurodegenerative condition affecting children and young adults. It causes a rapid decline in sight, speech and motor skills and is ultimately, life limiting. There is currently no cure for Batten disease.

The Batten Disease Family Association (BDFA) offers support and guidance to families affected by the disease, whilst raising funds for research into treatment and eventually, a cure.

As part of raising awareness of Batten disease, we would like to shine a light on the amazing work that the BDFA does, and support their efforts to raise funds to enable them to continue their work to improve the outcomes for affected children.

For more on Jeffreys Biker Journey and for details of the Batten Awareness Weekend please visit:

To learn more about Batten disease and the work of the BDFA, please visit their website:

About the charity

Batten Disease Family Association

Verified by JustGiving

RCN 1084908, SC047408
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total raised
+ £33.75 Gift Aid
Online donations
Offline donations

* Charities pay a small fee for our service. Find out how much it is and what we do for it.