Jeffreys Biker Journey - Batten Disease Awareness Event
Fundraising for Batten Disease Family Association
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Jeffrey's Biker Journey is a round Britain motorcycle relay ride to raise awareness of Batten disease. This year's ride includes the Batten Awareness Weekend at the Triumph Factory Visitor Experience, Hinckley, the home of Triumph motorcycles.
Batten disease is a rare, neurodegenerative condition affecting children and young adults. It causes a rapid decline in sight, speech and motor skills and is ultimately, life limiting. There is currently no cure for Batten disease.
The Batten Disease Family Association (BDFA) offers support and guidance to families affected by the disease, whilst raising funds for research into treatment and eventually, a cure.
As part of raising awareness of Batten disease, we would like to shine a light on the amazing work that the BDFA does, and support their efforts to raise funds to enable them to continue their work to improve the outcomes for affected children.
For more on Jeffreys Biker Journey and for details of the Batten Awareness Weekend please visit: www.jeffreysbikerjourney.co.uk
To learn more about Batten disease and the work of the BDFA, please visit their website: http://www.bdfa-uk.org.uk/