In May, my Dad and I will be running the Birmingham 10K. It has been a fair few years since we have ran together, but it is all for an amazing cause.

At 3 weeks old, my Daughter, Isla, was diagnosed with Prader Willi Syndrome (‘PWS’). PWS is currently an incurable rare genetic disorder, which occurs completely randomly in around 1 in every 22,000 births. It is estimated that there are just 2,000 people living with PWS in the UK, making Isla pretty special (but we knew that already!)

To obtain her diagnosis, Isla stayed 2 weeks in the hospital, having MRI’s, brain scans, copious amounts of blood tests, X-rays, etc. She is simply incredible.

My Dad and I are running for the Prader Willi UK Association, who provide immense support to families like mine. PWSA UK is the only organisation in the UK dedicated to supporting those affected by the syndrome who offer a wide range of services including a telephone helpline for those needing help or in crisis, information and literature, family events, volunteer support network, training and research.

PWSA UK does not receive any government funding and they are almost entirely dependent upon the wonderful support from people just like you!

They are also a great support to our extended family if and/or needed. Any donation will be appreciated beyond measure.