Jess's fundraiser for The PSP Association

London Marathon 2025 · 27 April 2025 ·
I am running the London Marathon in memory of my Grandad who passed away from the rare condition of Progressive Supranuclear Palsy. My Grandad was 73 years old when he sadly passed with this horrid disease. After 4 years of continuous consultant appointments and extensive testing he was finally diagnosed with PSP. Those 4 years were extremely distressing on our family with the unknown and misdiagnosis of his condition. Inspired by this I am aiming to raise awareness and funds for effective research and treatments for others affected by PSP in the UK.
PSP is a rare progressive degenerative brain disorder which can affect everything from balance, speech, vision, movement and swallowing. Little is known of PSP, there is no cure, no treatment and is often misdiagnosed.
PSPA is an invaluable charity for those suffering with the condition and their families and careers. Raising much needed funds will go towards raising awareness of this cruel disease, provide support to sufferers and their families and towards invaluable research.
Despite my Grampy losing his speech, balance and movement he would always have an amazing smile on his face and a sparkle in his eyes which we miss everyday. Your support and generosity would be greatly appreciated, together we can make a difference.
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