Story
I'm excited to be running the 2024 London Marathon and fundraising for Shooting Star Children's Hospice along side my Uncle Stefan Paciorek, in memory of Olivia. As a young teenager, meeting a medically complex child for the first time made a big impression upon me. What was more extraordinary though, was the way Olivia touched everyone she met. She radiated pure love and joy, and all of us who were privileged enough to spend even a short time with her had our lives forever changed. Shooting Star offered care and assistance to Olivia and her family in times of need, and I'm honored to be able to take this opportunity to support their important work.
You can follow my training misadventures both on strava [https://www.strava.com/athletes/38890854] and instagram [https://www.instagram.com/jessica.g131] and any donations to my fundraising efforts are greatly appreciated!
You can also learn more about lissencephaly here: [https://rarediseases.org/rare-diseases/lissencephaly] along with information about ongoing research and clinical trials [https://www.clinicaltrials.gov/search?cond=lissencephaly]
----------------------------------------------------------------------------------------------------------------------
"Shooting Star Children's Hospices supports babies, children and young people with life-limiting conditions, and their families across west London and Surrey.
Whether lives are measured in days, weeks, months or years, we are here to make every moment count. We support families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care."
