Story
I’ll be running 10 miles to raise money for CAN. It’s a charity close to my heart. My 2.5 year old son has a rare blood disorder called Congenital Dyserythropoietic Anaemia Type 1. He was diagnosed during my pregnancy and received 4 blood transfusions before he was born. Between birth and 1 years old he received blood transfusions around every 4 weeks. He now has a weekly injection which helps keep his haemoglobin stable but it is unclear what the future will hold for him with this condition.
Hopefully the money raised will aid research into CDA and help support patients and families living with Congenital Anaemias