My sister and I will be skydiving from 12,000ft at Headcorn in the help to raise money for Sid.

Sidney, our family friend’s little boy has been diagnosed with type 1 SMA (Spinal Muscular Atrophy). SMA is a genetic neuromuscular condition that causes muscle weakness and wasting due to the loss of motor neurons. It is a degenerative disease that, if untreated, is fatal. Historically, most babies with type 1 SMA do not reach the age of 2.

There is currently no cure for SMA, but there are now three drugs available that help stop the progression of the disease. Sidney has been fortunate enough to receive one of them, Zolgensma, on the NHS and is now participating in a clinical trial for Spinraza in Barcelona. Thankfully, he is doing well and continues to surprise us with his strength and determination. However, his battle is ongoing, and sadly, the NHS provides very little aftercare.

As a registered charity, Tree of Hope helps us raise more funds for Sid by claiming Gift Aid, and businesses can also donate.

We Thank you in advance for your donations.

Jessica and Olivia