Jo Longhurst

East London Super Rare Tea and Cake 2024

Fundraising for DCAction
£390
raised of £200 target
by 17 supporters
Fundraising for DC Action, 3 March 2024
Super Rare 2024 for DC Action
Campaign by DCAction (RCN 1167150)
Be there for people living with dyskeratosis congenita and join our annual Super Rare campaign! You’ll help us deliver expert emotional and practical support and information - and earn yourself an exclusive Super Rare tee.

Story

Tea and cake will be served at The Laboratory, Bethnal Green between 3- 5pm on Sunday 3 March. Everyone is welcome at this informal event, whether you are friends, family, locals, or people who have experience of a super rare condition.

RSVP

Please RSVP to longhurstjo@icloud.com so we can make sure we have enough refreshments. We will send you details of how to find us.

Donate

Please make a donation on this page to support people living with Super Rare bone marrow related conditions. Every donation, however small, makes a difference.

How DC Action are planning to help people affected by dyskeratosis congenita this year;

-Provide expert emotional well-being support, designed and delivered by qualified psychologists

-Help members of our community to access benefits and insurance

-Publish new up-to-date information resources to help people understand the condition, current research and treatment

-Facilitate improved opportunities for peer-to-peer support

-Raise awareness and help you to explain the condition to clinicians, teachers, employers, and the public.

About the campaign

Be there for people living with dyskeratosis congenita and join our annual Super Rare campaign! You’ll help us deliver expert emotional and practical support and information - and earn yourself an exclusive Super Rare tee.

About the charity

DCAction

Verified by JustGiving

RCN 1167150
DCAction supports people living with Telomere Biology Disorders across three main areas: Advocacy - a focus on research and improved access to expert care and treatments Education - to raise awareness of Telomere Biology Disorders amongst medical professionals, patients and the public Support - to provide support and advice for people and families living with Telomere Biology Disorders

Donation summary

Total raised
£390.00
Online donations
£390.00
Offline donations
£0.00

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