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On Sunday 7th March, we are holding a fundraiser in support of the Super Rare (But Not Alone) Campaign and DCAction. Tea and cake will be served 3-5pm at The Laboratory, Bethnal Green. Everyone is welcome at this informal event — please bring your friends and family!
Super Rare is an initiative from an alliance of small charities supporting people living with rare bone marrow-related conditions. Your donation will support the DC Action quarterly meetings, which bring together online people living with Dyskeratosis Congenita and Telomere Biology Disorders. The meetings are an opportunity to share experiences and knowledge, and to hear directly from experts in the field. The donation will also provide funds for our TeloNet networking meetings for clinicians and physicians from various disciplines, which help facilitate clinical knowledge, build expertise of Telomere Biology Disorders, and give us all hope for a healthier future.
Please RSVP to longhurstjo@icloud.com for full address, access information, and with any dietary requirements so we can make sure we have enough refreshments!
Every donation, however small, makes a difference.
Thank you from the DC Action Team