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Jo’s Birthday Fundraiser for Chordoma UK

Joanne McGregor is raising money for Chordoma UK
Celebrating the birthday of Jo

on 7 October 2026

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Chordoma UK was established in 2013 as a special fundraising initiative incorporated into UCL Cancer Institute Research Trust. Chordoma is a rare, relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages regardless of gender, race or sexual orientation. During 2017 Chordoma UK became an independent UK registered charity and exists to (a) promote and provide financial support to encourage primary and peripheral research projects into chordoma and research projects that might benefit the understanding of, and treatments, therapies, and cures for, chordoma being undertaken at bona-fide research establishments within the United Kingdom and elsewhere. (b) provide patient support services and other support resources for chordoma sufferers and those connected with or related to chordoma sufferers (c) promote awareness into chordoma within the patient, healthcare, and clinician communities. (e) support individuals and organisations whose aim is to raise funds for Chordoma UK and (f) provide financial assistance for other charities or bodies as are in any way concerned with research into chordoma and other related cancers or with the furtherance of awareness of chordoma.

Story

This month I celebrate my 60th birthday and would like to mark the occasion by introducing you to the charity that has supported me over the past few years and raise funds for the amazing work they do.

4 years ago I was diagnosed with a Chordoma, a rare bone cancer. I left the consulting room with a treatment plan, the name of a cancer I’d never heard of, but no information about that cancer. Fortunately Internet searches led me to Chordoma UK. Since then they’ve been there for me, helping me understand the disease, navigate the road to recovery and cope with the side effects of the treatment. I’ve made some wonderful friends and the monthly online meetings are a great source of support.

As well as offering support to those diagnosed with a Chordoma, the charity funds vital research into new ways to diagnose and treat the disease and hopefully one day find a cure.

Thank you for taking time to read this and for helping me use my ‘big’ birthday to celebrate a wonderful charity 💚

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Donation summary

Total
£640.38
+ £118.75 Gift Aid
Online
£640.38
Offline
£0.00

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