This charity is close to my heart and is a truly wonderful charity! Huntington’s is a rare genetic disease that most commonly starts in your 30s-40s causing nerve cells in the brain to waste away. It gets worse over time affecting your mood, movements, speech, thoughts, memory, pretty much everything until it wins! Thankfully only 0.015% of the UK are diagnosed with HD. Sadly, my family are part of that 0.015% along my mum’s line.

My mum is the strongest, kindest, most beautiful lady you would ever meet! She has been battling this for 20 years, this year! There is no cure, however, they are working to try find one. Last year they had a huge break through being in the final testing for a ‘drug’ that could slow down symptoms by nearly 75%.

Taking part in days like this helps ‘shine a light’ on a condition that isn’t always well know, and every bit of awareness and fundraising really does make a difference to this charity. They have some incredible people in this charity who offer so much support and care all over the country for people with HD and families affected.