Unfortunately our Niece Florence was diagnosed with a serious and very rare life-limiting brain condition called BPAN.

We can already see the effects of BPAN in Flo, at only 6 years old her speech is limited and often difficult to understand especially if you don't know her well. Flo will sadly begin to suffer from early onset dementia and Parkinson's disease at a young age and often suffers from seizures.

Despite the effects from this awful condition, Flo is one of the craziest, funniest ,happiest little girls who is always smiling and enjoying life being cheeky with her partner in crime, her little sister Bea. We hope she continues to do this for as long as possible! 🥰

We want to come together along with Flo's Mum and Dad to help raise money for this amazing cause that is so close to our hearts, so we will be climbing Mount Snowdon this June! 🏔 with Action for BPAN in their first fundraising event!

Action for BPAN is the first UK charity focused on funding research for a cure or treatment for Beta-propeller Protein-associated Neurodegeneration (BPAN).

Thank you for taking your time to read about our Niece, Any Donations would mean the world to our family and many others!💜

Joe, Tom, Amie and Ellie - Flo's Uncles and Aunties💜